That’s right I’ve had my last injections and I’m back, its been awhile and emotional but back on your computer screens once more. I am starting to write this without reading my last entry so I hope I don’t repeat myself and tell the same story twice, which of course many of you will know I like to do and I still like to finish the story even once you’ve told me that you’ve heard it!
My quiz went really well, I managed to raise around the £1000 mark (still waiting for final fiqure) but I am over the moon. This brings me over my ‘must have’ before I go. I managed to do my speech and embarrassed myself as normal – but no change there then. I had a lot of people travel far to get to Croydon so that was brilliantly amazing! Thank you all for coming and coughing up!
Last week I also was invited to celebrate the 1st years anniversary of the Demelza Eltham hospice. I must say I was very apprehensive to be attending as I thought I may find it upsetting as I genuinely did not know what to expect.
When I arrived and saw the building I started to relax as the buildings were quite small and the gardens were beautiful. It has a very calming effect and was not dome and gloom as I thought it would have been.
There were all different coloured flowers and a path way in remembrance/tribute of children that had sadly passed on or in support of the hospice. I got to meet two of the children there and that was then I remembered where I was and why we were there. One of them was called Conner, he is 1 years old but is so small he only looks about 4 months. He has a heart defect and is currently awaiting an operation. His older sibling has the same defect so they are going to do some tests to see if it is hereditary. He was very pale and his hands and finger nails were blue as his heart is not strong enough to pump the blood around his body, this is the reason he is so small his growth is slower than the average baby. He was very smiley and very cute as you can imagine.
He is currently there for a week while his parents and older sibling are on holiday as he is too ill to travel and the parents are trying to keep the older sibling in a routine and to give the older sibling and parents a break. His carer was lovely she was bubbly and caring and knew all about him and his family and the care he needs and the family history. It was remarkable nothing seemed to phase her.
We had a tour of the hospice and it was incredible there were individual rooms for each of the children which all have their own significant interior and different beds to accommodate the Childs age and illness . There is a hoist in all rooms which lead to the en-suite bathroom to allow the child to be taken to the bathroom and lowered into the bath safely.
On the top floor there are suites so the parents and siblings can stay if they want to, so they are close by, and if they really want they can actually stay in the room with the child that is unwell but the nurses try and encourage the parents to stay in the parents suite to try and allow them a good night’s sleep which is very valuable when you have a child with a life limiting condition.
All the rooms have their own televisions so the families can relax and have time together doing what all families do. This hospice will do as little or as much as the family need, they can take care of the catering, laundry and ironing of all of the family if the family would like that, or there are communal facilities if the family would like to do it for themselves as some families feel they need to be able to do something for their children like prepare meals when they hand over the health care to the hospice. Sometime they feel they have to retain some responsibility to the child and not hand all of this to the hospice.
There is the resting place for after the child has passed on and it looks just a normal bedroom the only difference is the temperature it is very cold. The parents, siblings, family and even pets can stay in the room for as long as they want 24 hours a day for as long as the child is there. There is also a room for families to arrange the service for the child. There is nothing more you could ask for from them that they do not cater for it such awful circumstances.
A large amount of staff are voluntary e.g. cleaners, caterers, gardeners etc as Demelza is mainly self funded through companies such as the company I work for (Axis) they would not be able to survive without volunteers and donations. The quality of the service just would not be there without donations and volunteers.
I really wish that no one would have had to have these illnesses happen to them but it is reassuring to know for those people who unfortunately do have these illness’ affect their families that there is such a remarkable place to go to for a rest and to be able to have the best possible care for all of the family. The atmosphere is so upbeat at Demelza it truly is amazing they are not focusing on the end they focus on the here and now and to make that day the best possible day they can by doing various activities, games, and for families not having to worry about doing chores like cooking, cleaning etc.
I felt so emotional when I left and I spent a lot of time that afternoon reflecting. It was such an amazing experience yet sad experience! Demelza doesn’t get much government funding and as you can imagine it costs millions to run, I now just wish I could raise £100, 000 for them and not just the £3500 that I am at at the moment! But going really proved that I am doing all this for an amazing and great cause!! When I am pooing in a bush and when I have blisters as big as balloons I can remember this experience and remember these little children, some as young as my little nephews are going through pain all day every day.
This said I really need to help myself by doing my training! I start a personal trainer tonight….setting me back a fortune but as I am as lazy as a fat pig resting in the mud on a summers day I need someone to put a hot poker up my bum (hopefully not literally!) to get my fit. I have just moved and my new house is up a hill (when I say hill it’s more like a tiny step up!) but it takes me about 10 minutes to get to the top because I keep running out of breathe! So with only 4 months left I really need to get my act in gear – I know I have been saying this for the past 6 months but I think I need to start doing something about it!!
So next time I walk past you put a poker up my bottom and tell me to run!
P.S I have also been made Carnival Queen of Bognor Regis and I hope my new title and exposure in local newspapers will mean I will get even more sponsoship before the four months is up!!